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Verious people have mentioned "cupping" numbers. What are these and what do they mean? Are these the numbers around the diagram the dr draws on each eye at each visit? Thank you for any info!
Hello, I have just now found your website after searching for contact information concerning Drs Marc and Michael Rose and their book "Save Your Sight".
Last week I was diagnosed with NTG in my left eye. My dr has been watching the "cupping" in the 5:30 to 6:00 area of my eye for several years. For the past few weeks I have noticed a "shadow" in my upper peripheral view. When I went to my dr, she said she did not see any change in the cupping but since I am now seeing the shadow she is wanting me to use Xalatan drops.
When embarking on the journey of self tonometry, many are quite surprised at how much and how often their eye pressures can vary. When I first discovered this fact, I thought that perhaps I was doing something improperly in measuring my pressures. Of course, that was not the case. Here is a recent question which we received..
In light of his busy schedule, we are so fortunate to have the participation of Dr. Robert Ritch on these forums and on our fiteyes newsgroup. I have received immense value from the questions which he has answered (both personal questions and those of others). Additionally, his insight and information concerning the nutrional aspects of glaucoma, and contribution of current articles and studies are invaluable.
Therefore, we would like to honor Dr. Ritch here at Fiteyes by posting the recent Jose Rizal International Medal Award nomination..
I am posting a question (and followup) which we received regarding the following article from the 'Asrani' study on the ICare portable tonometer..
We can also, potentially, install light sensors onto the spare neurons in blind people, converting the spare neurons into a camera so they can send info to the brain. We've done this in mice.
Having had a very interesting conversation with another tonometer user today concerning questions related to the corneal and glaucoma, I decided to post this article I recently came across.
Here is the full pdf link..
Many thanks for the painless introduction today. I wound up taking 20 sets of measurements over a 10 hour period. It was incredibly easy to do.
For the first time, I saw how my numbers spike after taking drops and then shortly after start to drop. It was great to be able to actually see this.
I expecially appreciate your remarks about turning it into something fun. My first microscope was like that and while this is much bigger, it is every bit as much fun. Maybe more.
When I first began to measure my pressures around 2 years ago, my IOP was fairly even between my right and left eyes. This remained relatively unchanged for a few months, but then an interesting (and alarming at the time) thing happened; I began to see a pressure shift towards my right eye. This actually became quite a profound difference as time went on., and it began to concern me because I felt it might signal the start of some 'problems' with my right eye.
Sometimes I take an eye pressure reading and then, a minute later, take another IOP reading...and sometimes, in another minute, take one more eye pressure reading. Each successive reading is almost always lower, sometimes considerably so. What does this mean?
Which reading is the "real" reading?
I had canaloplasty in one eye. ten days ago.Before surgery my IOP was 36.On my post surgery check up the following day it was down to 2. one week after later it was still only 4. My vision is still very blurry in the eye probably do to the low pressure.
Because this is such a fascinating topic and relevant to the Fiteyes emphasis on home based self tonometry, I am copying prior posts from the google fiteyes group here regarding the home measurement trend.
I have been coming across a few articles and studies dealing with c-type natriuretic peptides (CNP) and opioid receptors as they potentially relate to glaucoma, IOP and neuroprotection. While I don't have enough to go on in order to build any cogent arguments, I will present what I have found as a matter of interest. As a quick preview, it seems that CNP has neuroprotective effects..
A FitEyes member has recommended Brian A. Francis, MD, MS after trying six other glaucoma specialists who were not to her liking. The FitEyes member has just purchased her own tonometer and will be using it with the full support of Dr. Francis.
Title: Associate Professor of Clinical Ophthalmology
Department: Department of Ophthalmology
Locations: Doheny Eye Institute
Areas of Treatment:
Hi. Seemingly as soon as I started using glaucoma eyedrops, I started getting cataract in my right eye. Then the left eye, and both are very bad now. I am about to break down and get lens-replacement surgery I guess, as I know if no alternative at this point.
Possibly NAC eyedrops (Can-C) would have worked if I started them early enough, but I didn't.
Does anyone know who are the best glaucoma specialists in Los Angeles?
There are both USC and UCLA centers here. UCLA has the Jules Stein Eye Institute and I'm not sure what USC has. So there is not shortage of glaucoma specialists here, but ....
who is supportive of self-tonometry?
who is supportive of nutritional approaches, etc.?
Please help ASAP if you know of someone. Thanks!
Dr. Marc Rose is a really good, upbeat, friendly and supportive opthamologist. As he has said it to me, he supports ANYTHING that brings your IOP down. He advocates a nutritional approach for patients who will listen, utilizing foods and supplements. He wrote me a prescription for a tonometer and is supportive of that, although I have yet to find the budget.
Here is a recent thread on Fiteyes newsgroup
From Diane:
I have been doing self-tonometry every day for the past 8 months or so with the Reichert 7 cr. I have experimented with different types of exercise, both aerobic and weigh bearing, meditation, visualization, deep breathing, etc. It seems getting my IOP lowered through any of these measures is hit or miss. Sometimes my pressure winds up going higher, even when I am feeling completely relaxed and peaceful.
A FitEyes.com member asked the following question:
Just saw this article in the NewHavenRegister. Dr. Nils Loewen of yale Eye Center uses a treatment for advanced cases The article states " The second procedure involves inserting a gold shunt to drain fluid and is only used in advanced cases. Loewen said it"s somthing that i'm particularly excited about because we're are only one of six centers in the US to offer this.
A small piece of gold is inserted under the eyelid, which " shunts fluid into a previously unutilized area, the supra-choroidal space"
On the cover of page B3
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